Please note: If you have not read PART 1, 2 and 3 in this series, please click on the following links to do so before reading this post.
13) WHO ARE YOUR POTS DOCTORS AND/OR WHAT DOCTORS/SPECIALISTS DO YOU RECOMMEND?
My original cardiologist who suspected that I had POTS was Dr. Olubunkola M. Olubi (Dr. Olubi) at Cardiac Disease Specialists (
It wasn't long after the TTT that I was referred to the VANDERBILT AUTONOMIC DYSFUCTION CENTER at
The doctor who truly keeps everything going for me is my Primary Care Physician (PCP), Dr. Patrick Railey. He is an amazing family practice doc I used to work with, go to church with and do medical missions with before I became so sick. Like most physicians, he was not extremely knowledgeable about Dysautonomia before my diagnosis. However, he has really went out of his way to learn as much as he can about it so that he can help me as much as he can in his capacity as my PCP. He has been a huge advocate for me and a true blessing to my family and me during this crazy time in our life.
I do not have any personal knowledge about any other doctors; however, you will find a great PHYSICIANS' LIST at the Dysautonomia Information Network (DINET) website.
14) DO YOU HAVE ADDITIONAL RESOURCES YOU CAN PROVIDE?
Absolutely!! I have provided a few on the right side-bar of my blog but I have been working on a much more comprehensive list for you!
BUT YOU DON'T LOOK SICK
CRANBERRY TEA TIME
DYSAUTONOMIA - Symptoms, Causes and Treatment
DINET - Dysautonomia Information Network
MEDHELP - Autonomic Dysfunction Community
NDRF - National Dysautonomia Research Foundation
SSDI INFO - BYDLS.COM
SSDI - DISABILITY KEY
STARBRIGHT WORLD - Social Network for Teens
STARS - Syncope Trust And Reflex Anoxic Seizures
12 MORE PAGES
TILT TABLE TEST (TTT)
VANDERBILT - Autonomic Dysfunction Center
12 MORE PAGES
DARE: Dysautonomia Awareness Rarely Experienced
DISABILITY KEY - SSDI
Dysautonomia: My Journey, My Battle, My Victory, My Life
INSIDE MY HEAD
JONI AND FRIENDS
LIVING TIRED: My Journey with POTS
LIVING WITH BOB
ONE DAY AT A TIME
POTS and DYSAUTONOMIA AWARENESS
WHERE DID I GET THIS LEMON?
Mystery Diagnosis Episode About POTS (Orthostatic Intolerance) - Part I
Mystery Diagnosis Episode About POTS - Part II
Mystery Diagnosis Episode About POTS - Part III
YouTube - 5 Awesome Potsies!
YouTube - Chronically Kylie's Channel
FACEBOOK SUPPORT GROUPS:
DYSAUTONOMIA BOOK, 'God Needs Me. Living with Dysautonomia.'
Fans of BUT YOU DON'T LOOKS SICK
FIGHT AGAINST POTS
Got POTS? We do.
I HAVE DYSAUTONOMIA. IT DOES NOT HAVE ME!
Living with Postural Orthostatic Tachycardia Syndrome Group
POTS and Dysautonomia Awareness
STARS - Syncope Trust And Reflex anoxic Seizures
The Dysautonomia Connection
12 MORE PAGES
UII - Understanding Invisible Illness
This completes my FAQ series. I know for some it has probably been a bit boring. However, I can only hope and pray that there have been at least a few who have found it beneficial because they have been searching for answers related to their own battle with this illness or for those not yet diagnosed. I also hope it has helped answer some questions for some of those who know me but haven't quite understood what has been going on in my life.
Either way, thanks for taking the time to read these posts. As I said at the beginning of the series, in the next few days, I will create a separate page just for these questions. Then I will put a link to it at the top of this page for quick reference.
Thanks again for all the love and support you all continue to show to my family and me. It means more to us than you'll ever know!!
P.S. If anyone would like their name, blog or website added (or removed) to my resource list, please let me know.