DYSAUTONOMIA: MY FREQUENTLY ASKED QUESTIONS PART 4

Please note: If you have not read PART 1, 2 and 3 in this series, please click on the following links to do so before reading this post.

PART 1 Questions 1-4

PART 2 Questions 5-8

PART 3 Questions 9-12

13) WHO ARE YOUR POTS DOCTORS AND/OR WHAT DOCTORS/SPECIALISTS DO YOU RECOMMEND?

My original cardiologist who suspected that I had POTS was Dr. Olubunkola M. Olubi (Dr. Olubi) at Cardiac Disease Specialists (Newnan, GA Office). Dr. Dan Dan (yes, his name is Dan Dan!) who also works for Cardiac Disease Specialists (Piedmont Hospital - Atlanta Office) is the physician who confirmed my diagnosis with the Tilt Table Test (TTT).

It wasn't long after the TTT that I was referred to the VANDERBILT AUTONOMIC DYSFUCTION CENTER at Vanderbilt University Medical Center in Nashville, Tennessee. There I was evaluated and treated by Dr. Satish Raj. I HIGHLY recommend Dr. Raj and his staff at Vanderbilt. I could not be more pleased with that facility! My husband and I have been treated with the utmost dignity and respect every time we have been there. Everyone we have come into contact with has been very, very kind and compassionate. They have listened to everything we have had to say and they have done their absolute best to answer all of our many, many questions. Since my initial evaluation, I have been back twice and have been in frequent contact with Dr. Raj via email. I was scheduled for another follow-up with Dr. Raj not too long ago, but I have not been well enough to travel. I hope to be able to go again soon.

The doctor who truly keeps everything going for me is my Primary Care Physician (PCP), Dr. Patrick Railey. He is an amazing family practice doc I used to work with, go to church with and do medical missions with before I became so sick. Like most physicians, he was not extremely knowledgeable about Dysautonomia before my diagnosis. However, he has really went out of his way to learn as much as he can about it so that he can help me as much as he can in his capacity as my PCP. He has been a huge advocate for me and a true blessing to my family and me during this crazy time in our life.

I do not have any personal knowledge about any other doctors; however, you will find a great PHYSICIANS' LIST at the Dysautonomia Information Network (DINET) website.

14) DO YOU HAVE ADDITIONAL RESOURCES YOU CAN PROVIDE?

Absolutely!! I have provided a few on the right side-bar of my blog but I have been working on a much more comprehensive list for you!

WEBSITES:

BUT YOU DON'T LOOK SICK
CRANBERRY TEA TIME
DYNA KIDS
DYSAUTONOMIA - Symptoms, Causes and Treatment
DINET - Dysautonomia Information Network
MEDHELP - Autonomic Dysfunction Community
NDRF - National Dysautonomia Research Foundation
PHYSICIAN LIST
SEPSIS INFO
SSDI INFO - BYDLS.COM
SSDI - DISABILITY KEY
STARBRIGHT WORLD - Social Network for Teens
STARS - Syncope Trust And Reflex Anoxic Seizures
12 MORE PAGES
TILT TABLE TEST (TTT)
VANDERBILT - Autonomic Dysfunction Center

BLOGS:

12 MORE PAGES
CHRONIC BABE
DARE: Dysautonomia Awareness Rarely Experienced
DISABILITY KEY - SSDI
Dysautonomia: My Journey, My Battle, My Victory, My Life
INSIDE MY HEAD
JONI AND FRIENDS
LIVING TIRED: My Journey with POTS
LIVING WITH BOB
MELANIE'S JOURNEY
ONE DAY AT A TIME
POTS and DYSAUTONOMIA AWARENESS
SURE HOPE
WHERE DID I GET THIS LEMON?

ARTICLES:

AHA - POTS
POTS

BOOKS:

'God Needs Me: Living with Dysautonomia' by Lynn Fox Adams - May be purchased at Tate Publishing or Amazon.

VIDEOS:

Mystery Diagnosis Episode About POTS (Orthostatic Intolerance) - Part I
Mystery Diagnosis Episode About POTS - Part II
Mystery Diagnosis Episode About POTS - Part III
YouTube - 5 Awesome Potsies!
YouTube - Chronically Kylie's Channel

FACEBOOK SUPPORT GROUPS:

DFO
DYNA Frogs
DYSAUTONOMIA AWARENESS
DYSAUTONOMIA BOOK, 'God Needs Me. Living with Dysautonomia.'
DYSAUTONOMIA FOUNDATION
Fans of BUT YOU DON'T LOOKS SICK
FIGHT AGAINST POTS
Got POTS? We do.
I HAVE DYSAUTONOMIA. IT DOES NOT HAVE ME!
Living with Postural Orthostatic Tachycardia Syndrome Group
POTS
POTS and Dysautonomia Awareness
STARS - Syncope Trust And Reflex anoxic Seizures
The Dysautonomia Connection
12 MORE PAGES
UII - Understanding Invisible Illness

This completes my FAQ series. I know for some it has probably been a bit boring. However, I can only hope and pray that there have been at least a few who have found it beneficial because they have been searching for answers related to their own battle with this illness or for those not yet diagnosed. I also hope it has helped answer some questions for some of those who know me but haven't quite understood what has been going on in my life.

Either way, thanks for taking the time to read these posts. As I said at the beginning of the series, in the next few days, I will create a separate page just for these questions. Then I will put a link to it at the top of this page for quick reference.

Thanks again for all the love and support you all continue to show to my family and me. It means more to us than you'll ever know!!

{{HUGS}}

Teresa

P.S. If anyone would like their name, blog or website added (or removed) to my resource list, please let me know.