** Due to the increasing severity of MY ILLNESS, it has become impossible for me to continue to post on a regular basis. Unfortunately, as much as I desperately long to, I am also unable to visit each of your blogs often or reciprocate all the loving, supportive comments many of you continue to leave - even though at times it may appear as though you've arrived at some long ago, forsaken blog! With that said, I really want you to know that I miss every single one of you and that I really am still here! I'm just too sick and too weak most days to be able to sit up long enough to create a brand new post...or even read one. However, I absolutely do receive AND read every new encouraging word you leave (and, often, the old ones, again and again!) and I cherish them now more than ever! I truly appreciate your love, support, and, most importantly, your precious time spent on your knees in prayer for my family and me. It ALL means the world to me and I am truly blessed to have friends like you!
~Hugs and Sister Love, Teresa

FYI: All comments come to my email, which I can easily read on my phone. I also enjoy Facebook on my phone because I can catch up on A LOT in a very short time there. Soooo, if you're on Facebook, come 'friend' me there! {{HUGS}} **
Showing posts with label Friends. Show all posts
Showing posts with label Friends. Show all posts

Monday, September 20, 2010

NATIONAL INVISIBLE CHRONIC ILLNESS AWARENESS WEEK


This past week, September 13th -19th, was National Invisible Chronic Illness Awareness Week, sponsored by Rest Ministries. Nearly 1 in 2 people are living with a chronic condition, with about 96% of those people suffering silently with invisible illnesses. Therefore, the purpose of this worldwide effort, held annually in September, is to bring together those who live with invisible chronic illness and the people who love them. Organizations are also encouraged to educate the general public, churches, healthcare professionals and Government officials about the impact of living with a chronic illness that is not visually apparent. There are many ways to get involved in this campaign including blogging for the cause, joining the campaign on Facebook, completing & posting the meme '30 Things You May Not Know About My Invisible Illness, etc.

Since I was not feeling well at all last week and was unable to participate, I decided that I would do a post in honor of it today, just a tad bit late. Since I completed and posted the '30 Things You May Not Know About My Invisible Illness' meme last year and then revised and reposted it in June for the Day of Visibility, I decided to repost another favorite post of mine....


50 WAYS TO ENCOURAGE A CHRONICALLY ILL FRIEND



I recently saw this article on the REST MINISTRIES website. I thought it was really neat and would be very helpful for those who have a close friend or family member who is chronically ill.

Being sick, homebound and bedridden has made me feel increasing isolated and lonely. Most of the time, I just don't feel up to having visitors but yet I still feel lonely. It's kind of hard to explain, but I'm sure there are others out there who are experiencing these same feelings.

Since I became sick, I have slowly lost contact with most of my 'real life' friends. All of my closest friends know how much I dislike talking on the phone. (That has been the case long before I became so sick.) I think that, coupled with the fact that they know how extremely sick I've been, has caused most of them to fade into the background.

Occasionally, I will get an email or my husband will get a phone call from one of our friends saying they really want to come visit and/or help in some way but they just haven't known what to do. When that happens, it is usually difficult to think of something to say or to be open and admit that there IS something we need.

I'm sure we are not alone, so I thought I would share this really great list I found with you. I think it might be helpful for those of you who have a loved one who is ill and you have been searching for some way to show them you care and would like to help.

* * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * *

Lois Wyse once said, 'A good friend is a connection to life - a tie to the past, a road to the future, the key to sanity in a totally insane world.'

Little ways of reaching out make all of the difference to someone who is hurting, especially when the illness is chronic. It's rarely the "size" of the task, but the simple fact that you made an effort and remembered him or her in your thoughts.

Here are 50 creative ways to encourage a chronically ill friend, excerpted from 'Beyond Casseroles: 505 Ways to Encourage a Chronically Ill Friend' by Lisa Copen.

+ + + + + + + + + + + + + + + + + + + + + + + +

1. Ask, "What events in your life are changing and how are you coping with the changes?"

2. Understand that she lives in a constant state of making decisions for which there is no guarantee that she is making the right choice.

3. Offer to bring meals and put them in disposable containers. Attach a note saying "This doesn't need to be returned."

4. Add stickers to envelopes for a cheerful touch.

5. Arrange for your friend's kids to have a night with your children.

6. Don't make a person into a project.

7. Ask, "Would you be willing to talk to a friend of mine who has recently been diagnosed with a chronic illness and offer her some encouragement?" It makes one feel good to know that her experience can offer someone else hope and that God still has a purpose for her life.

8. Wash his car and put a little note inside for him to find later.

9. Remember important anniversaries, both the good and the bad. No one else will.

10. Ask, "Do you want company the day that you wait for the test results? I could come over for a couple of hours."

11. "No matter how little you have, you can always give some of it away." ~ Catherine Marshall. Just listen . . . until it hurts to not say anything. And then listen some more.

12. Ask her, "How do you feel God is working through-or despite-this illness in your life? I'm interested."

13. Ask, "What do you wish people understood about your illness?"

14. Don't make her feel guilty about things that she cannot do.

15. Treat her to a gift of movie rentals via postal mail through a service ($7-15 a month).

16. Ask, "Would you be comfortable with having your name on a prayer list, so that others can pray for you?" Don't assume.

17. Instead of saying, "I will pray for you," say, "I'd like to pray for you right now, if that's okay."

18. Mop the floors.

19. Ask if she would be interested in writing something for the church newsletter, maybe even about the subject of living with chronic illness.

20. Buy a brightly colored umbrella as a gift.

21. Ask, "Do you have an errand I can run for you before coming over?"

22. Ask her to do spontaneous things, like go to a concert in the park, or just for a picnic. She may be more likely to participate since she knows if it's a good day or a bad day. Don't be upset if she has to say no.

23. Don't say, "So, why aren't you healed yet?" or "I wonder what God is trying to teach you that you just aren't learning!"

24. For a unique gift, provide brightly colored paper plates, napkins, and utensils in a gift bag with a note that says "For when you don't feel like doing dishes."

25. Get her a pretty box to keep all of her notes of encouragement. Remind her to get it out and read things when she is feeling down.

26. Be her advocate. If you are at an event and walking/seating is an issue because of her disability, ask her if she'd like you to take care of it. If she says you can, be firm but not rude. Don't embarrass her by making accusations of discrimination or by making a scene.

27. Ask, "Would you be interested in a prayer partner from our church?"

28. Purchase matching coffee mugs for you and your friend, and then commit to pray for one another each morning while using them.

29. Say, "While you're in the hospital I'd be happy to take care of your pet."

30. Don't tell her about your brother's niece's cousin's best friend who tried a cure for the same illness and. . . (you know the rest).

31. Find out which charity is most important to her and then give a donation in her honor.

32. Ask, "What are your top three indulgences?" and then spoil her soon.

33. Hold the door open for her. They are heavy!

34. Don't tease her and call her "hop along" or "slowpoke." Comments you mean in fun can cut to the quick and destroy her spirit. Proverbs 18:14 says, "A man's spirit sustains him in sickness, but a crushed spirit who can bear?"

35. Say, "I know you must need someone to just vent to occasionally. I may not fully understand how you feel, but I'm here to listen anytime."

36. Ask your church youth group to come over and clean up the yard during seasonal changes.

37. Don't ask her, "How are you able to make it financially?" If she wants to share a burden she will.

38. Ask, "What would you advise me to look for in a new doctor?"

39. If your friend has a disabled parking placard and you are driving, allow her to tell you where she wants to park. If she's feeling particularly good that day, she may not want to park in the "blue space." Don't be disappointed that you'll have to walk farther.

40. Don't gossip about others. She'll wonder what you say about her. "Do not let any unwholesome talk come out of your mouths, but only what is helpful for building others up according to their needs, that it may benefit those who listen." (Ephesians 4:29)

~~~~~~~~~~~~~~~~~~

Proverbs 25:11 says, "A word aptly spoken is like apples of gold in settings of silver." Be kind, gentle, and respectful.

~~~~~~~~~~~~~~~~~~

41. Accept that her chronic illness may not ever go away. If she's accepting it, don't tell her the illness is winning and she's giving in to it.

42. Don't say, "Let me know if there is anything I can do." People rarely feel comfortable saying, "Yes, my laundry." Instead pick something you are willing to do and then ask her permission. Try the coupon in back!

43. Ask her to share her testimony at an event.

44. Buy a magazine subscription for her on her favorite topic.


45. Plant a rosebush to view from a window.

46. Understand that you don't need to know all of the details about the illness in order to be helpful. He'll share with you what he's comfortable with you knowing.

47. Don't ask, "Why can't the doctors help you?" or insinuate that it must be in her head. There are millions of people who are in pain with illnesses that do not have cures.

48. Avoid having gifts be "pity gifts." Just say, "I saw these flowers and their cheerfulness reminded me of you."

49. Send tapes of church services your friend misses to her with a copy of the bulletin and a note.

50. If she doesn't have a cordless phone, get her one. Phone headsets are also nice.


That's 50! Do you have any special ways you have reached out to someone special in your life who has been in need due to a long-term illness or injury?






To learn more about National Invisible Illness Awareness Week, click HERE. Thanks so much for stopping by! I hope you have an amazing week!



Photobucket

Tuesday, June 1, 2010

GRADUATION NIGHT ~
MOON OVER YUSUFIYAH

** TISSUE ALERT **

I usually don’t do two posts in one day, especially when I didn’t feel like doing the first post to begin with. However, I HAD to share this piece I received today. It is written by a wonderful friend, a man my family and I have known for a long time. His daughter, Abbey, and our daughter, Morgan, are the same age and have been friends since elementary school. Our families have also gone to church together since that time. Bob is the Solicitor in the county where we live and has done a lot of wonderful things for our community and for our family personally. The Stokely family lost their oldest son, Mike, who was serving in Iraq in 2005. I’ll let you read the rest…..


Graduation Night - Moon over Yusufiyah

By Robert Stokely

The Stokely family sat in a football stadium on a warm Friday night just before Memorial Day 2001 to watch Mike Stokely graduate high school. He already had boot camp / basic training and a year in the National Guard under his belt and would be heading off for Advanced Individual Training at Ft. Gordon in a few weeks. His little sister, Abbey, almost nine, couldn't let go of him, even to have a photo taken with Mike and their brother, Wes. She swung on his arm adoringly - her look of love says it all.


On the morning of August 16, 2005, as my wife Retta and I sat with Wes and Abbey just after breaking the news to them of Mikes death earlier that morning, then 13 year old Abbey buried her head into my shoulder, sobbing these words: "he was supposed to chase away my first boyfriend, he was supposed to cheer at my graduation from high school, he was supposed to be an uncle to my children..." These words seared my heart, broken as it was. I shall never forget them. She lost her oldest brother that day, her "Bubs" which she called him short for his nickname, Bubba.

Tonight, May 27, 2010 at the football stadium for Northgate High School in Sharpsburg GA, Abbey Stokely graduated last with her class. She has had a rough five years that started with Mike's death in Iraq. Five months later, she and I were broad sided by a driver who ran a stop sign at 45 plus and rolled and flipped us several times, shearing her right rear passenger door away. She spent 18 months recovering from her serious neck, back, and head injury. Those two events might seem enough to cause a student to graduate last.

But more came her way for just a month or so after she was fully recovered from the wreck. She was bitten by a tick and came down with Lyme Disease. In GA and the south their is medical bias against diagnosing or even recognizing that Lyme Disease exists here and doctor after doctor refused to treat her for Lyme, saying she just needed psychological help due to her brother's death and the car wreck. She missed over half her class instruction time during her sophomore and junior years, essentially home schooling herself between extensive rest periods, migraines, sickness, dizziness, and other symptoms that doctors said was just "in her head" and not Lyme. She and her mother traveled out of state to see doctors who might treat her for Lyme and finally we found a doctor about two hours from our home in GA that started aggressive treatment for Lyme and she finally started getting better. That might be enough by itself, but especially with the continuing grief over her brother's loss and her own near death experience to cause her to be last, but more was to come.

As she ended her junior year her best friend for several years had become her first boyfriend - the one Mike was supposed to chase away. But I think he might have let this fine young man who had been so good to his sister in all of her grief, injuries and sickness stay around. A gentleman in every respect was Thomas Broadwater. A fine son and brother-in-law he might have one day made. They went to the prom together and a great night it was, but then the next day my mother / Abbey's grandmother fell seriously ill at age 81 and died a week later. Looking back, it is about the most normal thing that has happened to Abbey in these five years. Her "Nana" adored her as she adored Nana. Enough you might think. But not yet, for three weeks after burying her Nana, Abbey Stokely buried her best friend, her first boyfriend, Thomas Broadwater, who died from complications of surgery on one of his lungs.

So, you might think that was enough and it was almost too much for her to bear. Thomas was also her classmate and supposed to graduate with Abbey and 395 others tonight. This last year has not been easy to say the least. Surely, this explains why she was the last. She wanted her brother Mike to be there to cheer for her and she felt it so unfair that Thomas wasn't there to get his diploma. And that weighed heavily on her. We were tense to see if she would get through this graduation tonight, an emotional time for her to say the least.

But none of these things are why Abbey Stokely was last to graduate with her class tonight. Abbey Stokely graduated last tonight because she was the Valedictorian and by tradition the last to receive her diploma and graduate. Before rising to give her speech to send her classmates into the future, she watched with bittersweet pride as a member of Thomas Broadwater's family came forward to receive his diploma posthumously. Then, she nailed her speech in front of thousands of friends, family and strangers. Just as she finished, a downpour hit and drenched the graduates and the crowd. A mile away not a drop.



I first wondered why it rained there. But then, as I saw the rising full moon emerge from behind the clouds; The same Moon over Yusufiyah I watched night after night as Mike served in Iraq, even as I prayed for his safety and wished to feel close to him, knowing he had seen the same moon 8 hours before. It was then I wondered if it was Mike's tears of joy and pride for his sister that had just drenched us all.

The Moon over Yusufiyah was shining bright over Sharpsburg tonight.

And I was reminded again that the highest cost of Freedom is A Lifetime of Love.


SGT Michael 'Mike' James Stokely




Robert Stokely
proud dad of Abbey Stokely, Wes Stokely
and Mike Stokely KIA 16 AUG 05 near Yusufiyah Iraq
USA E 108 CAV 48th BCT GAARNG

Thursday, May 20, 2010

THANKFUL THURSDAY



These are the things I am so very thankful for today:

1) My Savior, Jesus Christ, who continues to hold me up through all of life's storms and always reminds me that I am His.

2) My amazing, wonderful husband who works so hard to provide for our family and then comes home every evening to take care of me, regardless of how exhausted he may be, and never complains.

3) My 2 youngest daughters who have given so much precious time out of their lives to help care for me, when it is I who should be caring for them. I don't know how I can ever thank them enough.

4) The happiness in my heart that I still have since I was able to see my oldest daughter last week. I have also spoken to her several times on the phone since then. That has really made me happy.

5) All the wonderful, encouraging comments I receive in response to my posts. They make me smile and give me the motivation to write another post.

6) All of my prayer warriors! I truly feel your prayers and they really lift me up, especially during a long, difficult and pain-filled day and/or night.

7) Our sweet neighbor down the street who continues to occasionally bring us dinner. It is such a tremendous blessing to us and helps us out more than she can possible know.

8) For the incredible men and women (and their families) who serve in our military, to help protect each and every one of us from harm and keep our great nation FREE!

9) The upcoming graduation of our middle daughter, Morgan, from high school. I am so proud of the wonderful woman she has become and I can't wait to see what the Lord has in store for her future!

10) Last but definitely not least,
our wonderful, amazing group of friends who have offered to plan, prepare and host Morgan's graduation party so that we can check that off our list and won't have to worry about a thing! This is a HUGE, HUGE blessing for our family and an enormous burden lifted off our shoulders. You guys are AWESOME!



Thanks so much for stopping by. I'd love for you to join us in Thankful Thursday and take a moment to share what YOU are thankful for. Visit Sonya at Becoming a Strong Woman of God as a Wife, Mother and Friend to link up.

Blessings,

Teresa

Friday, April 16, 2010

FLASHBACK FRIDAY

Me, Tammy and Becky

This is a really old picture of my nearly life-long BFFs and me during one of our 'reunions' somewhere around 1998, I think. Don't ya just love my big 80's hair?? :0) Tammy, Becky and I have been friends for close to 30 years and, even though we don't see each other or talk as often as we would like, we are still very, very close.

The three of us became friends when we were around 10 or 11 years old and were all members of the same church. We went to separate schools (Becky and Tammy went to one and I was at another), but we were together nearly every weekend and any other chance we got. We were inseparable!

Once we became adults, life took us each our separate ways but we've never lost touch with one another. Oh, we often go really long periods of time without seeing or even talking to each other, but that never affects the strength of our friendship. When we finally do get together, whether in person or via email/phone, it is always as if we were never apart. We are always able to pick right back up where we left off and chat as if we do it every day!

There is just something truly special about life-long friendships and I am so thankful to have these very special women in my life. We have really shared A LOT together over the years - some good, some bad. We've definitely seen our fair share of both. However, I can definitely say that all the times we've shared together are AMAZING treasured memories that I wouldn't trade for anything in this world!

Here we are again in 2000. I hope we can get together again soon. It has been way too long!


Me, Tammy and Becky


These ladies are incredible blessings and I know in my heart that if I'm EVER in need, they will always be here for me.

Thanks so much for stopping by today! I hope you all have a wonderful weekend!


Blessings,

Teresa


Thursday, February 11, 2010

50 WAYS TO ENCOURAGE A CHRONICALLY ILL FRIEND

I recently saw this article on the REST MINISTRIES website. I thought it was really neat and would be very helpful for those who have a close friend or family member who is chronically ill.

Being sick, homebound and bedridden has made me feel increasing isolated and lonely. Most of the time, I just don't feel up to having visitors but yet I still feel lonely. It's kind of hard to explain, but I'm sure there are others out there who are experiencing these same feelings.

Since I became sick, I have slowly lost contact with most of my 'real life' friends. All of my closest friends know how much I dislike talking on the phone. (That has been the case long before I became so sick.) I think that, coupled with the fact that they know how extremely sick I've been, has caused most of them to fade into the background.

Occasionally, I will get an email or my husband will get a phone call from one of our friends saying they really want to come visit and/or help in some way but they just haven't known what to do. When that happens, it is usually difficult to think of something to say or to be open and admit that there IS something we need.

I'm sure we are not alone, so I thought I would share this really great list I found with you. I think it might be helpful for those of you who have a loved one who is ill and you have been searching for some way to show them you care and would like to help.

* * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * *

Lois Wyse once said, 'A good friend is a connection to life - a tie to the past, a road to the future, the key to sanity in a totally insane world.'

Little ways of reaching out make all of the difference to someone who is hurting, especially when the illness is chronic. It's rarely the "size" of the task, but the simple fact that you made an effort and remembered him or her in your thoughts.

Here are 50 creative ways to encourage a chronically ill friend, excerpted from 'Beyond Casseroles: 505 Ways to Encourage a Chronically Ill Friend' by Lisa Copen.

+ + + + + + + + + + + + + + + + + + + + + + + +

1. Ask, "What events in your life are changing and how are you coping with the changes?"

2. Understand that she lives in a constant state of making decisions for which there is no guarantee that she is making the right choice.

3. Offer to bring meals and put them in disposable containers. Attach a note saying "This doesn't need to be returned."

4. Add stickers to envelopes for a cheerful touch.

5. Arrange for your friend's kids to have a night with your children.

6. Don't make a person into a project.

7. Ask, "Would you be willing to talk to a friend of mine who has recently been diagnosed with a chronic illness and offer her some encouragement?" It makes one feel good to know that her experience can offer someone else hope and that God still has a purpose for her life.

8. Wash his car and put a little note inside for him to find later.

9. Remember important anniversaries, both the good and the bad. No one else will.

10. Ask, "Do you want company the day that you wait for the test results? I could come over for a couple of hours."

11. "No matter how little you have, you can always give some of it away." ~ Catherine Marshall. Just listen . . . until it hurts to not say anything. And then listen some more.

12. Ask her, "How do you feel God is working through-or despite-this illness in your life? I'm interested."

13. Ask, "What do you wish people understood about your illness?"

14. Don't make her feel guilty about things that she cannot do.

15. Treat her to a gift of movie rentals via postal mail through a service ($7-15 a month).

16. Ask, "Would you be comfortable with having your name on a prayer list, so that others can pray for you?" Don't assume.

17. Instead of saying, "I will pray for you," say, "I'd like to pray for you right now, if that's okay."

18. Mop the floors.

19. Ask if she would be interested in writing something for the church newsletter, maybe even about the subject of living with chronic illness.

20. Buy a brightly colored umbrella as a gift.

21. Ask, "Do you have an errand I can run for you before coming over?"

22. Ask her to do spontaneous things, like go to a concert in the park, or just for a picnic. She may be more likely to participate since she knows if it's a good day or a bad day. Don't be upset if she has to say no.

23. Don't say, "So, why aren't you healed yet?" or "I wonder what God is trying to teach you that you just aren't learning!"

24. For a unique gift, provide brightly colored paper plates, napkins, and utensils in a gift bag with a note that says "For when you don't feel like doing dishes."

25. Get her a pretty box to keep all of her notes of encouragement. Remind her to get it out and read things when she is feeling down.

26. Be her advocate. If you are at an event and walking/seating is an issue because of her disability, ask her if she'd like you to take care of it. If she says you can, be firm but not rude. Don't embarrass her by making accusations of discrimination or by making a scene.

27. Ask, "Would you be interested in a prayer partner from our church?"

28. Purchase matching coffee mugs for you and your friend, and then commit to pray for one another each morning while using them.

29. Say, "While you're in the hospital I'd be happy to take care of your pet."

30. Don't tell her about your brother's niece's cousin's best friend who tried a cure for the same illness and. . . (you know the rest).

31. Find out which charity is most important to her and then give a donation in her honor.

32. Ask, "What are your top three indulgences?" and then spoil her soon.

33. Hold the door open for her. They are heavy!

34. Don't tease her and call her "hop along" or "slowpoke." Comments you mean in fun can cut to the quick and destroy her spirit. Proverbs 18:14 says, "A man's spirit sustains him in sickness, but a crushed spirit who can bear?"

35. Say, "I know you must need someone to just vent to occasionally. I may not fully understand how you feel, but I'm here to listen anytime."

36. Ask your church youth group to come over and clean up the yard during seasonal changes.

37. Don't ask her, "How are you able to make it financially?" If she wants to share a burden she will.

38. Ask, "What would you advise me to look for in a new doctor?"

39. If your friend has a disabled parking placard and you are driving, allow her to tell you where she wants to park. If she's feeling particularly good that day, she may not want to park in the "blue space." Don't be disappointed that you'll have to walk farther.

40. Don't gossip about others. She'll wonder what you say about her. "Do not let any unwholesome talk come out of your mouths, but only what is helpful for building others up according to their needs, that it may benefit those who listen." (Ephesians 4:29)

~~~~~~~~~~~~~~~~~~

Proverbs 25:11 says, "A word aptly spoken is like apples of gold in settings of silver." Be kind, gentle, and respectful.

~~~~~~~~~~~~~~~~~~

41. Accept that her chronic illness may not ever go away. If she's accepting it, don't tell her the illness is winning and she's giving in to it.

42. Don't say, "Let me know if there is anything I can do." People rarely feel comfortable saying, "Yes, my laundry." Instead pick something you are willing to do and then ask her permission. Try the coupon in back!

43. Ask her to share her testimony at an event.

44. Buy a magazine subscription for her on her favorite topic.


45. Plant a rosebush to view from a window.

46. Understand that you don't need to know all of the details about the illness in order to be helpful. He'll share with you what he's comfortable with you knowing.

47. Don't ask, "Why can't the doctors help you?" or insinuate that it must be in her head. There are millions of people who are in pain with illnesses that do not have cures.

48. Avoid having gifts be "pity gifts." Just say, "I saw these flowers and their cheerfulness reminded me of you."

49. Send tapes of church services your friend misses to her with a copy of the bulletin and a note.

50. If she doesn't have a cordless phone, get her one. Phone headsets are also nice.


That's 50. Do you have any special ways you have reached out to someone special in your life who has been in need due to a long-term illness or injury??


Thursday, November 12, 2009

ENDURING SEPSIS
with Dysautonomia
Part 2 of 2

(NOTE: To fully understand this post, you'll need to read 'ENDURING SEPSIS with Dysautonomia - Part 1 of 2' . You can find it HERE.)

I don't remember much of the next few days, just every few hours when the meds would start to wear off I would wake and feel really, really bad. It was very unpleasant. It took a little while of working with the different doctors to get the right cocktail of meds, the proper dosages and exact times to be administered but they finally got it all figured out. But I'm telling you, if you don't have someone with you at the hospital 24/7, you can really get into big trouble. I can't tell you how many times my husband and my mom had to go to bat for me to get things straightened out and how many times I hit the nurse call button and no one ever came to assist me! It is pretty scary stuff! I hope and pray that I'm never in the position where I'm there all alone with no one to advocate for me.

It was finally determined that I had a staph infection and the Internal Medicine Specialist (IMS) assigned to me by the hospital was insisting my port would have to be removed. However, as you know, we have already been down this road several times before and we knew that staph did not always equal removing port. The IMS doc was not listening to my family or me AT ALL as we attempted to explain my ongoing illness OR my previous experience with this same type of infection, so we finally insisted on seeing the surgeon who implanted my port before making any rash decisions. And I am SO very thankful we did!

After speaking with my surgeon, we determined together that we would hold off on making a decision about the port for a few days. He said there was really no big hurry, plus he wanted an Infectious Disease Specialist to come in as a consult to see if they could determine exactly what kind of staph it was and what we needed to do to treat it.

Thankfully, after the Infectious Disease doc took the time to look at my history, my labs and the actual slides of the bacteria, she determined that antibiotics should be enough to get rid of the bacteria completely without having to remove the port! She said that we would have to change the particular IV antibiotic I was currently on and that I would have to stay on it for an additional 14-21 days. However, she said I would be able to go home and finish it. Hallelujah! I could have reached up and kissed that woman, I was so happy! I just had absolutely no energy to do so. *sigh*

After a 9 day hospital stay, I have been home almost a week. I am still extremely weak and still feel really yucky. I am receiving the IV antibiotics twice a day and it takes about 90 minutes for each dose. I have to have blood drawn every couple of days to make sure I'm getting enough but not too much. As long as everything goes as planned, I should be finished in about a week. I just hope and pray that ALL of the infection is gone at that time.

Thanks to everyone for your kind words of encouragement and your faithful prayers. They all mean so much to my family and me! We humbly ask that you continue to keep us in your prayers through the coming days. We surely need them.

Have a great day!

Thursday, August 20, 2009

THANKFUL THURSDAY

Thankful Thursday at Truth 4 the Journey

I found this totally awesome blog called TRUTH 4 THE JOURNEY.  She sets aside one day a week to blog about the 5 things she is most thankful for that week.  She calls it THANKFUL THURSDAY.  This is especially exciting to me this week because I am about to bust at the seams to tell someone our latest good news.  It's wouldn't be overly huge under normal circumstances but it means a ton to us at this point!

The 5 things I MOST thankful for this week are:

1) Jesus Christ, my Lord and Savior.  My Forever Friend.  I'm thankful that He loves me so much that He gave His life so that I could live for all eternity.

2) THE most amazing husband in the world who treats me like a queen every single day and my 2 youngest daughters who also sacrifice a huge part of their lives to helping me and caring for me.  I honestly do not know where I would be without all of them.

3) My mom and dad who are always ready at a moment’s notice to help out, no matter what I/we need.  They never, ever say no!

4) The fact that my oldest daughter, Whit, and I have been talking a lot more lately.  She will turn 23 years old this weekend and I couldn't be more proud of the woman and mother she has become.  

and last but certainly not least.....

5)  Our good news.....today we learned that my husband will DEFINITELY be keeping his job for at least the next 12-18 months!!  (We were afraid he was about to be laid off.)  Not only is it an incredible job but they provide us with truly amazing benefits, including our health insurance which they pay for 100%.  This is an amazing answer to prayer!  Hallelujah!

If you'd like to participate in THANKFUL THURSDAY or just read what others are so thankful for, hop on over to SONYA'S BLOG and check it out!

See ya soon!

Wednesday, July 8, 2009

NEW KID ON THE BLOG

Well, it is official. I have finally taken the plunge into the real world of blogging. It has taken me forever to get it all figured out, and I still have a LONG, LONG way to go, but I think I'm headed in the right direction. There have been some pretty major set backs lately, but I'm really pleased to say that I'm at least getting it started.

As some of you know, I did a few posts on what some might would consider a 'blog' on Facebook but I just didn't seem to have much of a following there because 1) it is hard to find readers there because it is difficult to navigate and 2) the sane folks who still haven't gotten lured in by 'the housewife's equivalent to crack', AKA Facebook, are not able to read my posts there without signing up for an account. Plus, I have not been feeling very well the last couple of months, so I haven't been keeping it updated as much as I would have liked.

Therefore, I thought I would start fresh with a new blog here where anyone can read it if they want. I plan to use it as a tool to continue to educate my friends and family - and even strangers who happen to stop by - about my disease and how it affects my life and the lives of my family. I will also use it to keep everyone up-to-date on what all is going on in our lives. Most of the time, there won't be a tremendous amount to write about but at least you will know what we're up to. I also believe it will be a great outlet for me to share some of my feelings about the struggles I face as I deal almost daily with pain and fear, anger and guilt, disappointment and frustration. However, I will also share all the good stuff, too, like the complete love and faith I have in my awesome husband who always treats me like a queen, the tremendous gratefulness I have for my awesome family who is ALWAYS here to support me on the good days and the bad, my thankfulness for our loving church family and friends who have always stood by our side through thick and thin and, most of all, my joy which I continue to find in my Lord and Savior each and every day. Without the awesome support group I have in my family, friends and my walk with my Savior, I honestly don't know where I would be today. No matter what, I am one blessed lady!

See ya soon!

Blessings,

Teresa




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