** Due to the increasing severity of MY ILLNESS, it has become impossible for me to continue to post on a regular basis. Unfortunately, as much as I desperately long to, I am also unable to visit each of your blogs often or reciprocate all the loving, supportive comments many of you continue to leave - even though at times it may appear as though you've arrived at some long ago, forsaken blog! With that said, I really want you to know that I miss every single one of you and that I really am still here! I'm just too sick and too weak most days to be able to sit up long enough to create a brand new post...or even read one. However, I absolutely do receive AND read every new encouraging word you leave (and, often, the old ones, again and again!) and I cherish them now more than ever! I truly appreciate your love, support, and, most importantly, your precious time spent on your knees in prayer for my family and me. It ALL means the world to me and I am truly blessed to have friends like you!
~Hugs and Sister Love, Teresa

FYI: All comments come to my email, which I can easily read on my phone. I also enjoy Facebook on my phone because I can catch up on A LOT in a very short time there. Soooo, if you're on Facebook, come 'friend' me there! {{HUGS}} **

Wednesday, March 17, 2010

DYSAUTONOMIA:
MY FREQUENTLY ASKED QUESTIONS
PART 1


I have received a lot of emails from readers asking me a variety of questions about my personal battle with Dysautonomia. I really would like to answer all of you individually but because my 'good days' are few, I often don't get to answer you in detail the way I would like. Therefore, I thought I would take the time to do a Frequently Asked Questions (FAQ) Series. I hope this will be helpful to those seeking answers about this disease and educational for those of you who would just like to know more about my life with this illness. Once this series is over, I will create a separate page just for these questions and will put a link to them at the top of this page.


Here is part one in the series:


1) WHAT KIND OF DYSAUTONOMIA DO YOU HAVE?

I have been diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) with Reflex Syncope.

2) WHAT EXACTLY IS POTS AND SYNCOPE?

POTS is a disease of the autonomic nervous system that is characterized by the body's inability to make the necessary adjustments to counteract gravity when standing up. Syncope is when you lose consciousness/pass out.

When I stand, the vessels in my legs and abdomen do not constrict properly in order to send blood back to my heart. Therefore, the heart does not have enough oxygenated blood to pump to my brain. This causes a rapid rise in my heart rate and a significant drop in my blood pressure. When the brain does not get enough blood (oxygen), it can not function properly and send appropriate signals. It is at that point that I pass out.

3) DO YOU FAINT/HOW OFTEN DO YOU FAINT?

Yes, unfortunately, as I stated before I do faint. I have syncopal episodes (fainting) pretty frequently. However, over time, I have learned how to recognize the symptoms, so I am better able to recognize when they are coming on and I am sometimes able to get down on the floor to prevent completely passing out and falling. Sometimes though, I don't even realize anything is happening until I wake up on the floor.

4) HAVE YOU HAD SIGNIFICANT INJURIES FROM FALLING?

By the Grace of God, I have not yet had any major injuries. I've had many bumps and bruises and a couple of pretty good lacerations but so far nothing serious.


Stay tuned for Part 2!

Oh, and HAPPY BIRTHDAY to my amazing dad today! We love you Daddy!

Blessings~

Teresa


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6 comments:

septembermom said...

Thank you for sharing this information about your illness. I'm glad that you are able to recognize the symptoms at times. I think of you often, my friend. Hugs :)

Tammy said...

Hi Teresa. How are you? Thanks for sharing your FAQ. What a great way to share your journey through this. I am praying for you! :) I will be watching for Pt 2.

Kathryn said...

Thanks for sharing! These things are good to know! :)

Teresha@Marlie and Me said...

thanks for taking the time and energy to educate us! while I cannot imagine what you are going through, I now have a bit more understanding.
you are such a shining example. HUGS!

Trudie said...

You are in my prayers every day. Thanks for sharing!

christy rose said...

I am so glad that you are doing this. I have learned a lot just from this post. Oh and Happy Birthday to your daddy!! :)

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