tag:blogger.com,1999:blog-2569835147435872226.post6234146814865552119..comments2023-12-30T16:28:52.814-05:00Comments on ♥ Too Many Heartbeats ♥: DYSAUTONOMIA and MY DAUGHTERTeresa @ ♥ Too Many Heartbeats ♥http://www.blogger.com/profile/06926075458122509648noreply@blogger.comBlogger22125tag:blogger.com,1999:blog-2569835147435872226.post-17648569764644739792009-09-18T16:51:02.883-04:002009-09-18T16:51:02.883-04:00Hello... I stumbled upon your blog after googling ...Hello... I stumbled upon your blog after googling Blog and Dysautonomia. Your's was the first I found. I am truly sorry about your daughter. I have been diagnosed with Dys. as well, and having 2 small children one of which tires very easily during the summer heat and has gotten sick from it before, I understand your worry about your daughter having Dys. I pray every day that my children never indeed end up with this. I pray that my oldest child who tires so quickly in the summer months, is just not fond of the summer heat instead of having the same symptoms I have. I will be praying for your family. And I will also continue to follow your blog. It's so helpful to find others who can identify with Dys. and it seems that you also share a strong faith in God and his grace as I do. Thanks for sharing your story, and my God help your daughter to find remission. Miranda<br />http://mirandapowell.blogspot.comMirandahttps://www.blogger.com/profile/07401223927172594228noreply@blogger.comtag:blogger.com,1999:blog-2569835147435872226.post-64772571015914907662009-09-09T17:13:47.264-04:002009-09-09T17:13:47.264-04:00I'm so sorry that your daughter has POTS also....I'm so sorry that your daughter has POTS also. I don't have it but my daughter, Meg (who also blogs about her POTS) and my son both have it. It is heart breaking to watch them suffer. I'm not sure how we're going to get my son through high school. He started having problems early in his freshman year and we've been struggling ever since. The only thing that keeps our family going is God's grace and I am so thankful for that. Best of luck to you and your family.Dehttps://www.blogger.com/profile/14913354060868655220noreply@blogger.comtag:blogger.com,1999:blog-2569835147435872226.post-80117034119720628982009-09-09T17:13:41.553-04:002009-09-09T17:13:41.553-04:00I'm so sorry that your daughter has POTS also....I'm so sorry that your daughter has POTS also. I don't have it but my daughter, Meg (who also blogs about her POTS) and my son both have it. It is heart breaking to watch them suffer. I'm not sure how we're going to get my son through high school. He started having problems early in his freshman year and we've been struggling ever since. The only thing that keeps our family going is God's grace and I am so thankful for that. Best of luck to you and your family.Dehttps://www.blogger.com/profile/14913354060868655220noreply@blogger.comtag:blogger.com,1999:blog-2569835147435872226.post-68280920499707129102009-09-08T19:25:08.280-04:002009-09-08T19:25:08.280-04:00I'm so sorry about Bek's diagnosis.
That&...I'm so sorry about Bek's diagnosis.<br /><br />That's probably one of the most difficult things you've ever had to hear.<br /><br />But I hear your strength.<br /><br />And your faith coming through.<br /><br />Hers too.<br /><br />Both of you are in my prayers.<br /><br />Sweet dreams.Debhttps://www.blogger.com/profile/03614103795909160503noreply@blogger.comtag:blogger.com,1999:blog-2569835147435872226.post-10238850346570750472009-09-08T15:22:06.083-04:002009-09-08T15:22:06.083-04:00Hi Teresa,
Girl you are such a strong woman. My h...Hi Teresa,<br /><br />Girl you are such a strong woman. My heart goes out to you and your daughter who have inherited not only the medical issues but also your strength.<br /><br />Thank you so much for the comment on my blog. I will keep visiting and commenting when I get home and have regular internet access.Deehttps://www.blogger.com/profile/17083331411694803694noreply@blogger.comtag:blogger.com,1999:blog-2569835147435872226.post-5804691544561645152009-09-08T13:41:10.675-04:002009-09-08T13:41:10.675-04:00Very sorry to hear about your daughter. She is ble...Very sorry to hear about your daughter. She is blessed to have a spirited mom like you. You all are in my prayers.Lakshmihttp://inevitablenow.wordpress.comnoreply@blogger.comtag:blogger.com,1999:blog-2569835147435872226.post-76671608168943903542009-09-08T11:37:04.962-04:002009-09-08T11:37:04.962-04:00Teresa,
Sorry about your excruciating back pain. ...Teresa,<br /><br />Sorry about your excruciating back pain. I have had herniated disks (very painful) and years ago I did everything from physical therapy to massage therapy to chiropractic for my back. All of the above provided temporary relief. It wasn't until I had acupuncture that my back problems got long-term, significant relief. I rarely have back pain anymore. Acupuncture has helped me SO much with SO many of my conditions.<br /><br />I'm really sorry to hear about Bek's diagnosis with POTS, as I know it's not what you wanted to hear. :( However, as you pointed out, you and your family are already well-versed on POTS and this can only help your daughter. Knowledge is power. <br /><br />I know this may seem little consolation and it's certainly understandable that you don't want her to suffer as you have. It sounds like she was already suffering, though, and now you at least have a name for it so you know what you're dealing with.<br /><br />That was a great tilt table test video.<br /><br />I am thinking of you and your family.<br /><br />Hopefully, she will go into remission... as you have described that some her age do.<br /><br />I am sorry to hear about what your friend Anita is going through. She is fortunate to have a friend like you supporting her through her grief.<br /><br />With everything that's going on, try to remember to practice good self-care. It would be easy for you to let everything around you get you very stressed out and that will only make you sicker. So do what you can to try to prevent that from happening so that your health won't suffer because of what's happening around you.<br /><br />JeanneJeannehttp://chronichealing.com/noreply@blogger.comtag:blogger.com,1999:blog-2569835147435872226.post-75632685949505574472009-09-08T08:07:05.387-04:002009-09-08T08:07:05.387-04:00I wish I knew what to really say but I don't. ...I wish I knew what to really say but I don't. All I can say is that I am sorry she got this diagnosis and I am praying for you all.Anonymoushttps://www.blogger.com/profile/18099878720994777657noreply@blogger.comtag:blogger.com,1999:blog-2569835147435872226.post-56580335979642078502009-09-08T01:48:00.542-04:002009-09-08T01:48:00.542-04:00I've just discovered your blog and read every ...I've just discovered your blog and read every post you've done, one right after the other. Your style is so open and very compelling. I have definitely added both you and your daughter to my prayers. I can't begin to imagine how devastating such a condition has been to your everyday life and I hope a miracle will appear quickly to allow you to again participate in family activities. I am signing on as a follower and look forward to your future posts. Hang in there!!Ramblin Mamahttps://www.blogger.com/profile/10370462257976522563noreply@blogger.comtag:blogger.com,1999:blog-2569835147435872226.post-91388955918292490572009-09-07T18:07:22.887-04:002009-09-07T18:07:22.887-04:00Oh my goodness. It's so tragic to hear of a yo...Oh my goodness. It's so tragic to hear of a young person already struggling with something like this. But she's clearly a fighter - just like her mom!Amandasaurushttps://www.blogger.com/profile/03820235298763152665noreply@blogger.comtag:blogger.com,1999:blog-2569835147435872226.post-77122481000232714002009-09-06T14:31:38.658-04:002009-09-06T14:31:38.658-04:00I'm sorry for all the horrible news going on i...I'm sorry for all the horrible news going on in your family. :( ((hugs))Terhttps://www.blogger.com/profile/08427090425449970893noreply@blogger.comtag:blogger.com,1999:blog-2569835147435872226.post-78095092765826239802009-09-06T12:44:56.214-04:002009-09-06T12:44:56.214-04:00I'm so sorry to hear about your daughter. She ...I'm so sorry to hear about your daughter. She and the others you mentioned will definitely be in my thoughts and prayers. If she is as strong and brave as you, she will definitely get through this. I know God is watching over your family. Keep your chin up. *Hugs*Mommy Bearhttps://www.blogger.com/profile/01112125948355778539noreply@blogger.comtag:blogger.com,1999:blog-2569835147435872226.post-79245592259319390282009-09-06T12:12:48.219-04:002009-09-06T12:12:48.219-04:00I'm so sorry to hear about your daughter's...I'm so sorry to hear about your daughter's diagnosis. I am looking forward to reading your post on the disease.Nicole @ WhenDidIBecomeMyMom.comhttps://www.blogger.com/profile/08457180776067903840noreply@blogger.comtag:blogger.com,1999:blog-2569835147435872226.post-10507452723118427262009-09-06T10:08:33.438-04:002009-09-06T10:08:33.438-04:00Praying for you and your family members...it alway...Praying for you and your family members...it always comes in waves...but you will get through it!!!Thoughtfully Blended Heartshttps://www.blogger.com/profile/13102061005480054019noreply@blogger.comtag:blogger.com,1999:blog-2569835147435872226.post-8797397461357288072009-09-06T09:03:05.324-04:002009-09-06T09:03:05.324-04:00I'm so sorry for the diagnosis. I pray she exp...I'm so sorry for the diagnosis. I pray she experiences remission. You are such an incredible inspiration every time you open up and let us in to what this challenge is like for you. <br /><br />visit me ~ you've been splashed! (Just a little recognition for being a wonderful blogger!)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2569835147435872226.post-15608471246810649642009-09-05T22:38:02.098-04:002009-09-05T22:38:02.098-04:00I'm so sorry your daughter received that news....I'm so sorry your daughter received that news. I will be praying for you both.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2569835147435872226.post-76041449540482108962009-09-05T20:41:19.733-04:002009-09-05T20:41:19.733-04:00My prayers are with you and Bek.
I stumbled it fo...My prayers are with you and Bek.<br /><br />I stumbled it for you.Hopefully more and more people can be well informed of it since its not a commonly talked about disease.<br /><br />shraddhaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2569835147435872226.post-87902916644526585892009-09-05T19:37:28.987-04:002009-09-05T19:37:28.987-04:00We will remember Bek in our prayers and trust that...We will remember Bek in our prayers and trust that 'nothing is too hard for our God' ( Gen 18:14). May God grant your family grace to go through this hard time and surround you all with assurance and peace in Him. I'm sorry I don't know how else to support you except through prayer. Hugs to you and BekMarina@EBMRhttps://www.blogger.com/profile/03023004361644781714noreply@blogger.comtag:blogger.com,1999:blog-2569835147435872226.post-18032748168522453342009-09-05T19:34:50.682-04:002009-09-05T19:34:50.682-04:00Oh dear. My heart is broken for you as you are hea...Oh dear. My heart is broken for you as you are heartbroken for your daughter. :(Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2569835147435872226.post-37631488949485563212009-09-05T18:01:57.848-04:002009-09-05T18:01:57.848-04:00T, I'm so sorry to hear that Bek has the same ...T, I'm so sorry to hear that Bek has the same illness. I guess as you said at least you know all about it and what to expect. My prayers are with you and your family.Julie Mhttps://www.blogger.com/profile/07789823988366183070noreply@blogger.comtag:blogger.com,1999:blog-2569835147435872226.post-73460616215224517612009-09-05T17:07:16.759-04:002009-09-05T17:07:16.759-04:00I also am sorry to hear that your daughter has to ...I also am sorry to hear that your daughter has to live with this illness. I will definitely keep your sweet daughter in my prayers. I also will pray for your friends Anita and Ramon. <br /><br />I'm sending you a virtual hug for whatever it's worth. Please know that your words and sincerity touch me very deeply. God bless you and your family always. You are a beautiful soul.septembermomhttps://www.blogger.com/profile/01570525910483384484noreply@blogger.comtag:blogger.com,1999:blog-2569835147435872226.post-36265325473780027662009-09-05T14:20:21.124-04:002009-09-05T14:20:21.124-04:00I'm so sorry that your daughter has to deal wi...I'm so sorry that your daughter has to deal with the same illness. That must be so hard to watch her have to go through it. I pray that through all of these trials God work all things for His good and His glory.Rachel Lundyhttps://www.blogger.com/profile/03040828112970215049noreply@blogger.com